Our mission is to raise funds for childhood brain cancer research, with a specific focus on Diffuse Intrinsic Pontine Glioma (DIPG), and to support families and children who are battling and living with the impact of this horrible disease.
On May 15, 2022, our lives changed forever when four-year-old Evan was diagnosed with Grade 4 Diffuse Intrinsic Pontine Glioma (DIPG). The baby of our family had an inoperable brain cancer considered terminal at diagnosis. Children with DIPG survive an average of 9-12 months post-diagnosis. Evan valiantly battled DIPG for 13 months and sadly gained his angel wings on June 19, 2023.
The treatment for DIPG typically involves a 30-day course of daily radiation and, if available, clinical trials, for which not all kids even qualify. Some families travel great distances to participate in a clinical trial. Finally, families hear the impossible news that they should go home and make memories.
Evan’s Golden Heart Foundation is a CORE Cause fiscally sponsored by the CORE Foundation EIN # 20-5997764. Donations are tax deductible to the furthest extent of the law.
Evan drew this digital heart for his mom.
